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Wednesday, October 29, 2014

#notspeaking

there are only a couple days left in rett syndrome awareness month-and it is game 7 of the world series-and since I can only pace so much, i came here to keep myself busy.

this past weekend i went on my now annual trip to healdsburg for the healdsburg half marathon. this was my third time.  i only signed up for it in 2012 b/c it was the perfect halfway point between me and Boston and I still didnt know if I would get spot on team rett so i thought might as well do a half while i wait. i recruited some friends, we rented a house and we became team boston or bust. it was a good idea.  i trained well for it. i finished in 2:34:59 and was damn proud. the giants also happened to be playing in the WS that year as well and i have fantastic memories from that weekend. it was my first half, i was so nervous.  i didnt want to make it about fundraising but wanted a slight rett connection so a couple of us had shirts that had a little something about rett on the back.

we went back in 2013 this time as the rett warriors.  we had grand plans to dress like warriors (there is a costume contest) but they fell through.  so did my plans of beating my time the year before.  2:36:07 this time. by then I had been to boston, almost finished but didnt because of the situation, and wasnt as worried about time. we did get shirts made that said I run because she cant on the front and more about rett syndrome.org on the back.  but again, we had a great group of ladies, a great house and a fantastic time.  two years in a row laying out in the yard post race in the sun with bubbly and hot tub.  amazing.

this year we went again as the rett warriors. no shirts, no socks, no nothing.  but we did have the #notspeaking kits though. and on friday night, over wine, i explained the plan. i read this to them 
and they understood like they never could have before.  friends that have known avery since birth had lightbulbs go off. new friends were touched. and on race day we wore our stickers and when no one asked we still gave out cards.  we ran silently and there were tears shed. it brought us all closer to what it is like -even in only one aspect--to have rett. #wwyg?

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