i spent a good part of my childhood in california. was here from about a year old to just before I turned 8. then we moved to va beach. i have been back here in california for just about 14 years and every now and then I smell something that brings me right back to being 5 or 6 or 7 years old. there are plants here that arent in va. and every now and then i smell a fennel plant and im at mare island elementary playing house and making salad with weeds. that happened today.
and then a fleeting thought goes to my daughter. my avery-because she isnt doing what i did when i was her age. not even close. and even if she were, she cant tell me. she cannot speak. imagine that. really think about it....
crazy right? it is hard to think of even going an hour without speaking. so that is what I would give. im giving up speaking for at least one hour-while running a half marathon. my whole team is joining me and we hope to raise a ton of awareness and some cash to cure this thing.
so how does this not speaking thing work? we will wear a sticker that says ¨im not speaking for rett syndrome, ask me why!¨ and when they all ask, Ill hand them a card to direct them to www.rettland.org/notspeaking and hopefully they will be moved to give and share! #wwyg #notspeaking
rettland raises money to give to families that are participating in clinical trials. there are clinical trials! that in and of itself is unreal. the fact that rettland exists to help get the families that want to participate but might not otherwise be able to, is out of this world. it just blows my mind.
wanna have your mind blown? take part! go to rettland.org/notspeaking and donate, or order your kit to help the #notspeaking campaign. because -- what would YOU give?