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Tuesday, September 30, 2014

what would you give?

i spent a good part of my childhood in california.  was here from about a year old to just before I turned 8.  then we moved to va beach. i have been back here in california for just about 14 years and every now and then I smell something that brings me right back to being 5 or 6 or 7 years old. there are plants here that arent in va.  and every now and then i smell a fennel plant and im at mare island elementary playing house and making salad with weeds. that happened today.

and then a fleeting thought goes to my daughter.  my avery-because she isnt doing what i did when i was her age. not even close. and even if she were, she cant tell me. she cannot speak.  imagine that. really think about it....

crazy right? it is hard to think of even going an hour without speaking. so that is what I would give.  im giving up speaking for at least one hour-while running a half marathon.  my whole team is joining me and we hope to raise a ton of awareness and some cash to cure this thing.

so how does this not speaking thing work? we will wear a sticker that says ¨im not speaking for rett syndrome, ask me why!¨ and when they all ask, Ill hand them a card to direct them to www.rettland.org/notspeaking and hopefully they will be moved to give and share! #wwyg #notspeaking

rettland raises money to give to families that are participating in clinical trials.  there are clinical trials! that in and of itself is unreal.  the fact that rettland exists to help get the families that want to participate but might not otherwise be able to, is out of this world.  it just blows my mind.

wanna have your mind blown?  take part!  go to rettland.org/notspeaking and donate, or order your kit to help the #notspeaking campaign.  because -- what would YOU give?




Tuesday, September 2, 2014

people are awesome.

ive been known to utter the phrase ¨i hate people¨.  and maybe in traffic i still do.  or while shopping in costco.  but man people will surprise you and make you cry and lift you up when you least expect it.

in about six weeks im running the healdsburg half marathon for the third time with great friends.  we have made it into a girls weekend. we rent a home up there and hot tub and drink champagne and talk and laugh and cry. this year it was my turn to organize the troops and find the house and send the checks.  well i sent the final check a week or so ago and on saturday got a call from the owner.  turns out i screwed up the part where you actually write out the words that describe the numbers in the little box.  oops.  so she let me know that she would shred the check and I could just mail another, no biggie.  I let her know I was in SD for the holiday weekend but would get the new check out on tuesday first thing.

that night-after a lovely day on coronado island-i checked my email and there was this:

Hi Erica -
  I wanted to let you know that I would like to reduce your rental fee by $500.00,  of which I would ask that you please use towards your  fundraising goals for Rett Syndrome. I stumbled upon an  article and your family blog today, while trying to find  your phone number this afternoon. I am so touched by your  story, and the terrible disease your beautiful daughter is  fighting. My children are my world; and as a mother I am so  inspired by your strength and dedication to finding a cure.
Thank you for all that you are doing to raise awareness of  Rett Syndrome, and for turning something so painful for your  family into something positive in this world. My heart is  with you. Thank you. And much admiration and congratulations  for running the Boston Marathon, twice - I don't know  you, but you are certainly my new  hero. Sending love and  many thanks....


i mean, right?  I read it out loud to my roomies and we were all a ball of tears.  so.  even though traffic and costco trips are still somewhat unavoidable, people are awesome.