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Sunday, July 1, 2012

seen this yet?



Click here to see an amazing 10 minute video from the staff and families of Katie's Clinic.  So much work went on behind the scenes to make this happen and the message is clear: our girls (and boys) are smart! Im so lucky I got to be a part of it.

Please share it with everyone you know! 

2 comments:

Kim said...

Love it! I absolutely love that yes while we want a cure, it is awesome that there is Katie's Clinic that helps kids/families now! Love this! I have always wondered if Katie's Clinic would be helpful for Lily with CDKL5?
We'd be willing to take the trip if it were :)

Erica said...

thanks Kim! We see boys with MECP2 duplication so I dont know why we couldnt see a gorgeous girl with CDKL5! Ill talk to our med director about it. David Frame came and visited last year (or maybe it was this year) and he seemed impressed! :)