Back in 2006 when it was time for me to start thinking about finding child care for Avery so I could go back to work, I just couldn't do it. I remember the day I started looking and just got this feeling that I should stay home with her. Luckily, we were able to make it work out financially and that was it. I was done with my full time job-no more paycheck, no more benefits. After being in the work force for 10 years. It was weird at first but I have gotten the hang of this stay at home mom thing over the past 5 years. For a while I worked part time (from home mostly) as a grant writer for a wonderful organization for children and adults with Down syndrome. I was pregnant with Nolan when I started that job and had to give it up once he was crawling. But I had gotten the "bug" so to speak. I knew I wanted to get a job again once the kids were a little older but I really had no clue what I wanted to do.
Enter Rett syndrome and Katie's Clinic. ( you can read about our very first visit HERE. )
Shortly after that first visit I got up the nerve to mention to a few key people there that if there was ANY job I could do for them, I would be more than willing and able to do it. Fast forward about a year and I am asked if I would be willing to take the coordinator position once the current person (the amazing Pat!) retired. The question hadn't even been fully asked before a resounding YES fell from my lips. I became an official clinic volunteer shortly after that and over the past 6 months or so have gotten to know the amazing group of people at the clinic. About two weeks ago, the position was finally posted and I applied. On Tuesday, I got an email and I am starting next week! It is a 24 hour a week position for now, but the plan is to increase it a bit in the future. Ill be taking intakes for new families, scheduling clinic days and coordinating the Natural History Study in March and October. I will likely also be doing some speaking to schools and some grant writing.
Im so excited because I know this is a job I can do and do well. Im nervous to learn all that need to learn in a short period of time-but I know that the team will be there for me and help me out along the way. Life is going to change a little and I cannot wait to get into a new groove. I just couldn't be happier-Im going to work for a fantastic clinic at a renowned hospital with incredible people doing game changing stuff for families like ours. sounds pretty darn perfect to me.