working girl

Back in 2006 when it was time for me to start thinking about finding child care for Avery so I could go back to work,  I just couldn't do it.  I remember the day I started looking and just got this feeling that I should stay home with her.  Luckily, we were able to make it work out financially and that was it.  I was done with my full time job-no more paycheck, no more benefits.  After being in the work force for 10 years.  It was weird at first but I have gotten the hang of this stay at home mom thing over the past 5 years.  For a while I worked part time (from home mostly) as a grant writer for a wonderful organization for children and adults with Down syndrome.  I was pregnant with Nolan when I started that job and had to give it up once he was crawling.  But I had gotten the "bug" so to speak.  I knew I wanted to get a job again once the kids were a little older but I really had no clue what I wanted to do.

Enter Rett syndrome and Katie's Clinic.  ( you can read about our very first visit HERE.  )

Shortly after that first visit I got up the nerve to mention to a few key people there that if there was ANY job I could do for them, I would be more than willing and able to do it.  Fast forward about a year and I am asked if I would be willing to take the coordinator position once the current person (the amazing Pat!) retired.  The question hadn't even been fully asked before a resounding YES fell from my lips.  I became an official clinic volunteer shortly after that and over the past 6 months or so have gotten to know the amazing group of people at the clinic.  About two weeks ago, the position was finally posted and I applied.  On Tuesday, I got an email and I am starting next week!  It is a 24 hour a week position for now, but the plan is to increase it a bit in the future.  Ill be taking intakes for new families, scheduling clinic days and coordinating the Natural History Study in March and October.  I will likely also be doing some speaking to schools and some grant writing. 

Im so excited because I know this is a job I can do and do well.  Im nervous to learn all that need to learn in a short period of time-but I know that the team will be there for me and help me out along the way.  Life is going to change a little and I cannot wait to get into a new groove.  I just couldn't be happier-Im going to work for a fantastic clinic at a renowned hospital with incredible people doing game changing stuff for families like ours.  sounds pretty darn perfect to me.