The day started well enough, and the drive out to San Francisco was a breeze. Avery was quiet and happy in the car which is rare. We got there, (on time) and found the garage, got a spot right away and got out. Avery then lost it, and I began to sweat. I turn around to see the line and it was LONG. Disney long. Avery would not move. She was crying sad tears and having a total tantrum. So we took her kicking and screaming into this long line. (yes I know that typical kids do this too-but they can tell you why they are crying, Avery cant.) Luckily the line moved quickly and she stopped crying shortly after we got inside. We got her to calm down to look at some of the awesome fish and sea life they have there-what an amazing place. Nolan was loving it. And my cousins son, who is a few months older than Avery, showed us all the very coolest things.
This place is amazing. In one room, it was "snowing" every 15 minutes. Nolan really liked that part. He seriously got a kick out of it. But it was watching the video I took of him in the "snow" on our ride home that had me in tears. There is Nolan 2 years old laughing and playing and just being a kid and there is his big sister in a stroller, screaming and kicking and hitting. I just couldnt help but see what she COULD be doing-if Rett syndrome wasnt wreaking havoc on her body and her brain.
Then we ventured into the rainforest. I knew it would be hot in there but thought it would be a great idea. It was pretty neat-but there wasnt much time to see anything. Avery was screaming again by this time and trying to maneuver her in the stroller and keep up with Nolan was making me sweaty ANYWAY. I only caught one little girl staring at Avery and I might have snapped "keep staring!" , but maybe I said it in my head? Nope I said it outloud. Then just as we get to the elevator to get the heck out of the sauna, Avery decides to spit her clif bar all down her shirt. busted. "no food or drink next time ma'am!" I just kept my head down cleaning her up and kept sweating. That was it for us.
Guess who was giggling by the time we got back in the car? Guess who was crying?
We are holding on to the hope that the screaming will subside and we can try again to do the fun stuff regular families get to do, but I guess Ill give myself points for trying.