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Monday, February 21, 2011

this one is called: we tried, but i cried all the way home.


But we tried! We attempted to pretend that we are a typical family of typical kids and met up with my wonderful cousin, her equally wonderful hubby and their two cuties for a trip to the California Academy of Sciences. I have wanted to go there for a while and my cousin invited us to join them on their membership which is a great deal because admission is pricey! It would have been $80 for just me, red and avery (kids under 4 are free). so thank you, thank you to my awesome cousin! What a treat. We even got to go in one hour prior to opening time-due to their membership.

The day started well enough, and the drive out to San Francisco was a breeze. Avery was quiet and happy in the car which is rare. We got there, (on time) and found the garage, got a spot right away and got out. Avery then lost it, and I began to sweat. I turn around to see the line and it was LONG. Disney long. Avery would not move. She was crying sad tears and having a total tantrum. So we took her kicking and screaming into this long line. (yes I know that typical kids do this too-but they can tell you why they are crying, Avery cant.) Luckily the line moved quickly and she stopped crying shortly after we got inside. We got her to calm down to look at some of the awesome fish and sea life they have there-what an amazing place. Nolan was loving it. And my cousins son, who is a few months older than Avery, showed us all the very coolest things.



This place is amazing. In one room, it was "snowing" every 15 minutes. Nolan really liked that part. He seriously got a kick out of it. But it was watching the video I took of him in the "snow" on our ride home that had me in tears. There is Nolan 2 years old laughing and playing and just being a kid and there is his big sister in a stroller, screaming and kicking and hitting. I just couldnt help but see what she COULD be doing-if Rett syndrome wasnt wreaking havoc on her body and her brain.
video
Then we ventured into the rainforest. I knew it would be hot in there but thought it would be a great idea. It was pretty neat-but there wasnt much time to see anything. Avery was screaming again by this time and trying to maneuver her in the stroller and keep up with Nolan was making me sweaty ANYWAY. I only caught one little girl staring at Avery and I might have snapped "keep staring!" , but maybe I said it in my head? Nope I said it outloud. Then just as we get to the elevator to get the heck out of the sauna, Avery decides to spit her clif bar all down her shirt. busted. "no food or drink next time ma'am!" I just kept my head down cleaning her up and kept sweating. That was it for us.

Guess who was giggling by the time we got back in the car? Guess who was crying?

We are holding on to the hope that the screaming will subside and we can try again to do the fun stuff regular families get to do, but I guess Ill give myself points for trying.

9 comments:

mj said...

TONS of points for trying, my friend. and points for speaking your mind...out loud. really. sometimes it just has to be done. :) sorry about the tears, but glad it was a fun day!

Colleen said...

You get tons of points and a star for your chart. Sorry that it was such a hard one and that Nolan is so normal and wonderful. If you ever want to journey all the way down to the aquarium, we have member passes and a child who sits in a chair screaming, you are welcome to join us. I am so very proud of you for this effort as i am sure it felt like moving a mountain.

Zenaida said...

Points!! are you kidding me! You get anything you want! I am so so very proud of you for giving Avery a chance! Yes we are a typical family with Rett syndrome in our lives. And we have to do as much typical as we can. Sometimes I really want to skip the fun because of the stares and the stupid questions and "the how do you do it? but I do typical because my child is typical at heart and that is the reason I keep trying and also crying on my way back home!

Lynn said...

Oh, I so know the feeling. I can't tell you how many times I've been that person crying all the way home after a disastrous outing. Also, fighting with my husband at the same time, which always makes it so much better. Ack. I keep trying too. I guess it's like the child birth thing where we kinda forget in between outings....

Ann Marie said...

You are definitely a rockstar for trying. I wish we could have joined you. Logan and Nolan could have danced in the snow while their big sisters threw fits. So sorry for the tears. Hope your next outing goes much smoother. Hugs!

Dawn said...

You are an awesome Mom and get major points for trying, it's all we can ever do!

Erica said...

love all you mommies so much. hugs!!
xxoo

cassandra said...

Erica, Matt had such a great time with you too:) He mentioned to me again, how pretty aunt erica is :) Tom said he'd love to go again - all of us. Sending big hugs and wishing I knew what I could say to make it better.

Laura said...

Oh sweetie, I so feel your pain. We don't get to do "normal" stuff either because of Anna's anxieties. Most things families get to do are too loud and too crowded for her. Chaos is a big no-no.

But you stuck it out, and Nolan will have great memories of going there. Kudos to you for trying! IT wasn't totally wasted:)