Tuesday, August 10, 2010


Today was one of those days that passed by so quickly I cant even believe it. Part of it was the deliciousness of sleeping till 8am. glorious. And it wasnt Avery screaming that woke me up. It was my phone ringing. I ignored the call and listened for Avery. She was up but quiet. ahhhhhh. I let that soak in for a few minutes and then the "buuuuuuuuuuusssssssssss" yells started. So up I got. As soon as I entered the kitchen the "mommy" calls start from Nolan. breakfast. get dressed. play outside. Babysitter came at 11-I ran out to Michael's for supplies (for a Vegas related surprise), went to the gym, picked up sandwiches and came home to meet Maren and Leah for a pool date!
I know it's old news but it's so great to hang with a mom who gets it and a girl who is so similar to Avery. So we ate our sandwiches in the back yard with my vulture children begging for bites. Nolan went down (unwillingly) for a nap and our fantastic sitter stayed with him. And two moms went with two girls to the pool (and both moms forgot their cameras).
We must be a sight. Our two gorgeous girls with their long flowing hair and their matching Safe.t.seal swim vests. Not to mention their repetitive hand movements! So into the pool we go. Cute girls. They had a few swim races which were all won by Leah. We tried to cheat but got caught every time. :)
Then Avery became too too loud and we had to go anyway to relive the sitter. But we all had fun. Im getting better with the tough moments-like today when Avery approached a woman who was eating chips and the woman said: "she signs SO WELL!" And I said-"oh she's not signing, she has rett syndrome and she has repetitive hand movements that she cant control" like it was no big deal. And at that moment it wasn't. Maybe it was because there was another little girl a few steps away doing something similar. Im sure the woman thought it was Tourette's. Especially with Avery's yelling outbursts. That kind of makes me laugh.
So we came back here and the girls kind of walked around each other and smiled. Then I got my camera and we got a few cute shots. The first was the best and totally sums them up. Its blurry b/c they are always moving so quick and both girls have one hand to their mouth.

Thanks for coming!!


mj said...

too fun. we did win the races, but aves taught leah everything she knows about swimming. :) see you friday!

Colleen said...

What a great whirlwind! I think this just reinforces the need for a rett compound so we can all be close and feel normal. See you soon!

The MacDonald Family said...

Sounds like a GREAT time!! The girls look adorable! See you Friday!!!!

Ann Marie said...

It looks like you all had a great time! I'm looking forward to the normal feeling this weekend.

The Thagards said...

That is awesome that you have another Rett mom so close and that you can hang out. I have one mom who I have really connected with but she lives three hours away. I only get to see her at the clinics.

You are awesome for speaking up to the lady at the pool! I have had moments where I can say what I want and others where I just sort of mumble something and walk away mad at myself.