I've written 2 new hubs on hubpages about our experience since we have gotten Avery's Rett diagnosis. check them out here!
http://hubpages.com/hub/Rett-Syndrome
http://hubpages.com/hub/Rett-syndrome-part2
Enjoy!
PS: Lots of repeat info from the blog!
rettsyndrome.org
2 comments:
Hey,
Call me this week if you or the hubby need to talk. If you need the number it is at our web site
www.erikavangiesenfoundation.org
Merry Christmas sister.
Luv ya
Thanks for introducing me to hubs! The song that you reference brings back the same memories for me when I hear it - the dreaded call with the diagnosis. Big hugs from MI!
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