Tuesday, November 17, 2009


We are on our way to a new ped neuro! Im actually surprised at how well Kaiser has handled the situation. I called yesterday to file a formal grievance and I have already gotten two follow up calls. Today, I heard that the complaint would be handed to the CHIEF today. Good. And they are all over getting us a new neuro. I have every reason to believe the new one will be great-cant get much worse!

Her EEG is scheduled for Wednesday the 25th. I hope it goes well-anyone have any experiences to share? We didnt really get any instructions from anyone.

The genetic counselor called me today. She has been so nice and is one of those people that is doing the job they were meant for. You can tell she cares-even over the phone. She called me as I was getting the kids out of the car so I have to call her back tomorrow-but she said she could go over the exact results of the test with me. Im anxious to learn as much as I can.

We continue to be overwhelmed by all the support and love from friends, family and even people we have yet to meet! thank you!!!

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